Eseme's Den

One of the Angel's friends posted on Facebook that her father visited her house in Maine.... And picked a yellow, newly bloomed dandilion. Even the flowers are confused, with temperatures in the 40's and low 50's.

It is hard to recall that Christmas is in two weeks. We have the dark of winter, sunset at 4:30, but not the cold.

In more amusing news, while I changed clothes in the bathroom there came a polite tapping on the door. Followed by "Ooooow-Ooo-Oooooow!" Which was repeated several times in a high pitched time. Followed by "I am a ghooooooooost" in a rather familiar small boy's voice. Just as I managed to stop grinning like a loon, the voice added "I will eat your soul!"

It is extremely hard to not howl with laughter, but I managed to as I did not want to hurt his feelings.

Posted via m.livejournal.com.

Halloween got cancelled, for the most part, in our household, due to sick.

This was rather saddening, as we were fortunate to have Kiddo at our place (due to scheduling, this is unlikely for several more years) and were really looking forward to trick-or-treating.

However, with Angel sick since last Wednesday, me getting sick Friday, and Kiddo arriving with a very stuffy nose and coughing in his sleep, it was decided that the best option was to stay home and watch Star Wars movies.

We did let Kiddo pick out a bag of half-off Halloween candy the next day. He wanted the bag of chocolate balls whose wrappers were designed to look like eyeballs. He is, indeed, his father's son.

Hope everyone else had a wonderful weekend.

The Angel, who is a very important part of my life, has thyroid problems, among other things.

He has very bad thyroid problems, from what I can tell.

He started on 25 mcg of Levothyroxine, which is a generic of synthroid (I think).

They keep checking his thyroid hormone levels, and while his medication has been stable for sometimes half a year, it keeps going up. And up. And up.

He is now on 200 mcg of the same medication. This is due to thyroid levels creeping back up to 3.9 at his last blood draw about a week and a half ago.

He had been diagnosed with Hashimoto's Thyroiditus, which is to say his white blood cells are attacking his thyroid as a foreign object, and at this point neither of us is sure he has a thyroid anymore.

He has been utterly exhausted lately, likely due to this. On my urging, he tried to look up Facebook groups for thyroid issues, to maybe find other people to talk to who have the same issues and who may have advice on dealing with chronic fatigue.

He keeps finding groups open only to women, or who blatantly describe Hashimoto's as a "women's issue." And that is WRONG and extremely alienating for him.

I know there are at least three people on my friends list who also have thyroid issues. Can I ask for some info?

It is me, or is that a really high does of the meds? I am really worried that his system is not in a good place, to need that much of the tyroid hormones.

Are there other meds he can ask his doctor about?

Are there any good online support groups or websites you can recommend for chronic fatigue and chronic pain (we suspect arthritis, and he also had a traumatic brain injury about 18 years ago and gets very bad headaches)? Ones that are less women-centered and more helpful?

He has not until recently thought of himself as disabled, and many of his family and friends do not think that way either. He is not used to managing energy levels, which can result in him running out of "spoons" suddenly.

While I know several people with chronic pain and chronic fatigue, and I know about the spoon theory, I thankfully (and am very grateful for this) do not have those conditions myself. So can't really offer advice or insight that he really needs. I'm appreciate anything that you have to offer. He does not currently have an LJ, and is on Facebook all day. However, if there are better groups or resources on LJ or Dreamwidth, I will encourage him to sign up (and will start using my Dreamwidth as well).

Thanks everyone!

I say that a lot!

A scene from this morning:

Me, thinking : Flax oil pill, multivitamin, vitamin C, B-complex for my hair, Calcium... I have all my pills!

*turns around*

My boyfriend, with arms up in classic Crinous Garou pose : RAWR!

Me : Scream


I nearly ran into him, he was so close. And very, very quiet.


So that was my morning. How was yours?

So, time has just flown by. I got sick in late September, and then again two weeks later on Columbus Day. Having the death plague twice in a one-month timeframe really throws everything out of whack. I had to scramble at work, and while I was doing a lot of lying down trying to get well, I was not online.

November had two vacations - I was out of town for most of one weekend to go to a Goo Goo Dolls concert in New Hampshire. That was my birthday present (the show got moved to a month after my birthday) and it was awesome. Then I spend Thanksgiving in Nova Scotia, Canada with my family, the rest of whom were buying land.

This month has been busy with holiday shopping and taking care of Angel, who has been having terrible headaches for the past few days.

This has all added up to me barely being online or on LJ. I am once again far, far behind on my friends list, but I hope to rectify that soon.

I hope you are all doing well, and that your lives have been less crazy than mine!